July 22, 2022
Dear sensei glioblastoma
Today is the third anniversary of discovering your presence in my brain. I thought you disappeared last October when I said with amazement that I was clear for a year. But this week’s MRI shows you are back with a few little friends. The R word has changed from remission to recurrence, at least for now. Apparently, my attempt to bribe the MRI technician to erase any spots wasn’t enough.
I wonder what you want of me. Is there some lesson I have not yet completed? Or is there some new lesson about which I’m not even aware that requires your renewed presence?
I tried to picture you as a little cartoon character, bristling with growth, a little cartoon bubble coming out of your mouth saying “I’m baaaaack” just like Randy Quaid says when he flies up the asshole of the alien spacecraft in Independence Day. It’s good for a short laugh.
Maybe you have returned to help me figure out a kinder strategy to deal with those who hear the news and make statements like “you must be devastated.” “You must feel gut punched.” “You must have some difficult decisions ahead in terms of quality and quantity.” Maybe the news hasn’t really registered yet, maybe I’m in denial, but right now, what comes out of me sounds snippier and snarkier than I’d like. I need to practice saying something like thank you for your concern, but no, I don’t feel devastated. No, I don’t feel gut punched. Some of the decisions might actually be simple to make, like today I need to water the trees, later this afternoon we will hang the garlic we harvested this morning under the porch to dry. I trust that my body will continue to take care of basic decisions such as nap when I’m tired, eat when I’m hungry, drink water even if I’m not thirsty. My heart takes care of the rest — keep working with my incarcerated students, make art when the visions come, walk out into the field and bow to Esperanza, and most importantly, stay connected with those I love, especially my best friend Henry.
Sensei, maybe you can help me deal with the Western attitude towards cancer. I don’t appreciate the militarized language, in particular the word fight. I bet you don’t either. I see you and your kin as teachers to learn more about spirit, soul, love, mortality, and the big question — why are we here? I don’t think it’s to fight. I need to say please don’t put words in my mouth. Please don’t project your anxiety on to me. Please don’t tell me how to feel based on how you feel. It’s not my job to make you feel better because you are scared and anxious to hear what’s happening with me. I need to say “if you really want to help me, face your own mortality. Deal with your own fear. Be present. Do your job.” But usually I’m left feeling that unless someone has faced cancer or some other mortal illness, or unless they have been sensitized to these issues, they are just not going to get it. And I have to forgive them for that.
Watching PBS the other night, Henry and I were mesmerized by the new images from Hubble, infinite galaxies spinning towards us from deep space, dark matter giving birth to stars, black holes swallowing everything. Somehow these images superimposed themselves upon the images Doctor Monroe showed us of my own brain – the reinvigorated spiral galaxy in the right parietal lobe, and the little bits of star babies showing up as white spots here and there. Infinity without and infinity within. Beautiful. Thanks for that.
Sensei, I am counting on you to help guide me through round two. Clearly you are not done yet. I’m not either. Maybe there’s another book and another carving. For sure there are more paintings and many more glorious sunrises and sunsets. We are both star stuff and we are both still alive. May I remind you that since you have chosen me as a host, that means if you kill me, you will die too. Let’s work together, Kathy san
I came to your site, seeking to learn more about your path of applying Aikido principles in challenging situations off the mat and within human dynamics. For over 30 years I’ve worked with people in challenging, stressful contexts and served as a catalyst and disappearing stitch as they gain more ability to both influence and flow within their roles and systems. Increasingly I find myself recommending that they study Aikido principles.
Today I had a few minutes between meetings and went in search of your writing. And discovered you, at supernova, just as you write about watching the images of discovery from the Webb telescope. Centering myself I was disappointed to find you at the edge of mortality. Centering my own discomfort I was hesitant to write a comment,, feeling like an intruder. I barely exist as a theoretical speck in your shining universe – the embodiment of an idea that someone might be listening. But too often in my life I’ve listened to that caution, not usually resulting in any observable benefit. So, re-engaging with my purpose of learning I began to read several of your entries here. And in them I witness you walking forward across the mat of mortality, still intentional, not wasting energy in defensive struggle. Taking in information with a realistic listening lens, not distracted by a throng around you, contemplating the walk and seeing within it the complexity and beauty of the life that you are woven into – regardless of how near or far the scissors.
Thank you for choosing to share this intimate and universal journey out loud. Thank you for the modeling I was seeking. Thank you for your teaching.
Barbara , what a lovely heartfelt comment. thank you
Thank you for this – for reminding me…